RareLink Implementation Guide
2.0.2 - 2.0.2

RareLink Implementation Guide - Local Development build (v2.0.2) built by the FHIR (HL7® FHIR® Standard) Build Tools. See the Directory of published versions

Resource Profile: RareLink IPS Patient

Official URL: https://rarelink.bih-charite.de/fhir/StructureDefinition/rarelink-ips-patient Version: 2.0.2
Draft as of 2025-08-08 Computable Name: RareLinkIPSPatient

A RareLink-specific profile for the IPS Patient resource.

Usages:

You can also check for usages in the FHIR IG Statistics

Formal Views of Profile Content

Description of Profiles, Differentials, Snapshots and how the different presentations work.

This structure is derived from PatientUvIps

Terminology Bindings

PathConformanceValueSet / CodeURI
Patient.identifier.userequiredPattern Value: official
http://hl7.org/fhir/ValueSet/identifier-use|4.0.1
From the FHIR Standard
Patient.name.extension:dataAbsentReason.value[x]requiredPattern Value: unknown
http://hl7.org/fhir/ValueSet/data-absent-reason
From the FHIR Standard
Patient.name.userequiredNameUse
http://hl7.org/fhir/ValueSet/name-use|4.0.1
From the FHIR Standard
Patient.genderrequiredAdministrativeGender
http://hl7.org/fhir/ValueSet/administrative-gender|4.0.1
From the FHIR Standard
Patient.link.typerequiredLinkType
http://hl7.org/fhir/ValueSet/link-type|4.0.1
From the FHIR Standard

Constraints

IdGradePath(s)DetailsRequirements
dom-2errorPatientIf the resource is contained in another resource, it SHALL NOT contain nested Resources
: contained.contained.empty()
dom-3errorPatientIf the resource is contained in another resource, it SHALL be referred to from elsewhere in the resource or SHALL refer to the containing resource
: contained.where((('#'+id in (%resource.descendants().reference | %resource.descendants().as(canonical) | %resource.descendants().as(uri) | %resource.descendants().as(url))) or descendants().where(reference = '#').exists() or descendants().where(as(canonical) = '#').exists() or descendants().where(as(canonical) = '#').exists()).not()).trace('unmatched', id).empty()
dom-4errorPatientIf a resource is contained in another resource, it SHALL NOT have a meta.versionId or a meta.lastUpdated
: contained.meta.versionId.empty() and contained.meta.lastUpdated.empty()
dom-5errorPatientIf a resource is contained in another resource, it SHALL NOT have a security label
: contained.meta.security.empty()
dom-6best practicePatientA resource should have narrative for robust management
: text.`div`.exists()
ele-1error**ALL** elementsAll FHIR elements must have a @value or children
: hasValue() or (children().count() > id.count())
ext-1error**ALL** extensionsMust have either extensions or value[x], not both
: extension.exists() != value.exists()
ips-pat-1errorPatient.namePatient.name.given, Patient.name.family or Patient.name.text SHALL be present
: family.exists() or given.exists() or text.exists()

Terminology Bindings

PathConformanceValueSet / CodeURI
Patient.languagepreferredCommonLanguages
http://hl7.org/fhir/ValueSet/languages
From the FHIR Standard
Additional Bindings Purpose
AllLanguages Max Binding
Patient.identifier.userequiredPattern Value: official
http://hl7.org/fhir/ValueSet/identifier-use|4.0.1
From the FHIR Standard
Patient.identifier.typeextensibleIdentifier Type Codes
http://hl7.org/fhir/ValueSet/identifier-type
From the FHIR Standard
Patient.name.extension:dataAbsentReason.value[x]requiredPattern Value: unknown
http://hl7.org/fhir/ValueSet/data-absent-reason
From the FHIR Standard
Patient.name.userequiredNameUse
http://hl7.org/fhir/ValueSet/name-use|4.0.1
From the FHIR Standard
Patient.genderrequiredAdministrativeGender
http://hl7.org/fhir/ValueSet/administrative-gender|4.0.1
From the FHIR Standard
Patient.maritalStatusextensibleMarital Status Codes
http://hl7.org/fhir/ValueSet/marital-status
From the FHIR Standard
Patient.contact.relationshipextensiblePatientContactRelationship
http://hl7.org/fhir/ValueSet/patient-contactrelationship
From the FHIR Standard
Patient.contact.genderrequiredAdministrativeGender
http://hl7.org/fhir/ValueSet/administrative-gender|4.0.1
From the FHIR Standard
Patient.communication.languagepreferredCommonLanguages
http://hl7.org/fhir/ValueSet/languages
From the FHIR Standard
Additional Bindings Purpose
AllLanguages Max Binding
Patient.link.typerequiredLinkType
http://hl7.org/fhir/ValueSet/link-type|4.0.1
From the FHIR Standard

Constraints

IdGradePath(s)DetailsRequirements
dom-2errorPatientIf the resource is contained in another resource, it SHALL NOT contain nested Resources
: contained.contained.empty()
dom-3errorPatientIf the resource is contained in another resource, it SHALL be referred to from elsewhere in the resource or SHALL refer to the containing resource
: contained.where((('#'+id in (%resource.descendants().reference | %resource.descendants().as(canonical) | %resource.descendants().as(uri) | %resource.descendants().as(url))) or descendants().where(reference = '#').exists() or descendants().where(as(canonical) = '#').exists() or descendants().where(as(canonical) = '#').exists()).not()).trace('unmatched', id).empty()
dom-4errorPatientIf a resource is contained in another resource, it SHALL NOT have a meta.versionId or a meta.lastUpdated
: contained.meta.versionId.empty() and contained.meta.lastUpdated.empty()
dom-5errorPatientIf a resource is contained in another resource, it SHALL NOT have a security label
: contained.meta.security.empty()
dom-6best practicePatientA resource should have narrative for robust management
: text.`div`.exists()
ele-1error**ALL** elementsAll FHIR elements must have a @value or children
: hasValue() or (children().count() > id.count())
ext-1error**ALL** extensionsMust have either extensions or value[x], not both
: extension.exists() != value.exists()
ips-pat-1errorPatient.namePatient.name.given, Patient.name.family or Patient.name.text SHALL be present
: family.exists() or given.exists() or text.exists()
pat-1errorPatient.contactSHALL at least contain a contact's details or a reference to an organization
: name.exists() or telecom.exists() or address.exists() or organization.exists()

Differential View

This structure is derived from PatientUvIps

Key Elements View

Terminology Bindings

PathConformanceValueSet / CodeURI
Patient.identifier.userequiredPattern Value: official
http://hl7.org/fhir/ValueSet/identifier-use|4.0.1
From the FHIR Standard
Patient.name.extension:dataAbsentReason.value[x]requiredPattern Value: unknown
http://hl7.org/fhir/ValueSet/data-absent-reason
From the FHIR Standard
Patient.name.userequiredNameUse
http://hl7.org/fhir/ValueSet/name-use|4.0.1
From the FHIR Standard
Patient.genderrequiredAdministrativeGender
http://hl7.org/fhir/ValueSet/administrative-gender|4.0.1
From the FHIR Standard
Patient.link.typerequiredLinkType
http://hl7.org/fhir/ValueSet/link-type|4.0.1
From the FHIR Standard

Constraints

IdGradePath(s)DetailsRequirements
dom-2errorPatientIf the resource is contained in another resource, it SHALL NOT contain nested Resources
: contained.contained.empty()
dom-3errorPatientIf the resource is contained in another resource, it SHALL be referred to from elsewhere in the resource or SHALL refer to the containing resource
: contained.where((('#'+id in (%resource.descendants().reference | %resource.descendants().as(canonical) | %resource.descendants().as(uri) | %resource.descendants().as(url))) or descendants().where(reference = '#').exists() or descendants().where(as(canonical) = '#').exists() or descendants().where(as(canonical) = '#').exists()).not()).trace('unmatched', id).empty()
dom-4errorPatientIf a resource is contained in another resource, it SHALL NOT have a meta.versionId or a meta.lastUpdated
: contained.meta.versionId.empty() and contained.meta.lastUpdated.empty()
dom-5errorPatientIf a resource is contained in another resource, it SHALL NOT have a security label
: contained.meta.security.empty()
dom-6best practicePatientA resource should have narrative for robust management
: text.`div`.exists()
ele-1error**ALL** elementsAll FHIR elements must have a @value or children
: hasValue() or (children().count() > id.count())
ext-1error**ALL** extensionsMust have either extensions or value[x], not both
: extension.exists() != value.exists()
ips-pat-1errorPatient.namePatient.name.given, Patient.name.family or Patient.name.text SHALL be present
: family.exists() or given.exists() or text.exists()

Snapshot View

Terminology Bindings

PathConformanceValueSet / CodeURI
Patient.languagepreferredCommonLanguages
http://hl7.org/fhir/ValueSet/languages
From the FHIR Standard
Additional Bindings Purpose
AllLanguages Max Binding
Patient.identifier.userequiredPattern Value: official
http://hl7.org/fhir/ValueSet/identifier-use|4.0.1
From the FHIR Standard
Patient.identifier.typeextensibleIdentifier Type Codes
http://hl7.org/fhir/ValueSet/identifier-type
From the FHIR Standard
Patient.name.extension:dataAbsentReason.value[x]requiredPattern Value: unknown
http://hl7.org/fhir/ValueSet/data-absent-reason
From the FHIR Standard
Patient.name.userequiredNameUse
http://hl7.org/fhir/ValueSet/name-use|4.0.1
From the FHIR Standard
Patient.genderrequiredAdministrativeGender
http://hl7.org/fhir/ValueSet/administrative-gender|4.0.1
From the FHIR Standard
Patient.maritalStatusextensibleMarital Status Codes
http://hl7.org/fhir/ValueSet/marital-status
From the FHIR Standard
Patient.contact.relationshipextensiblePatientContactRelationship
http://hl7.org/fhir/ValueSet/patient-contactrelationship
From the FHIR Standard
Patient.contact.genderrequiredAdministrativeGender
http://hl7.org/fhir/ValueSet/administrative-gender|4.0.1
From the FHIR Standard
Patient.communication.languagepreferredCommonLanguages
http://hl7.org/fhir/ValueSet/languages
From the FHIR Standard
Additional Bindings Purpose
AllLanguages Max Binding
Patient.link.typerequiredLinkType
http://hl7.org/fhir/ValueSet/link-type|4.0.1
From the FHIR Standard

Constraints

IdGradePath(s)DetailsRequirements
dom-2errorPatientIf the resource is contained in another resource, it SHALL NOT contain nested Resources
: contained.contained.empty()
dom-3errorPatientIf the resource is contained in another resource, it SHALL be referred to from elsewhere in the resource or SHALL refer to the containing resource
: contained.where((('#'+id in (%resource.descendants().reference | %resource.descendants().as(canonical) | %resource.descendants().as(uri) | %resource.descendants().as(url))) or descendants().where(reference = '#').exists() or descendants().where(as(canonical) = '#').exists() or descendants().where(as(canonical) = '#').exists()).not()).trace('unmatched', id).empty()
dom-4errorPatientIf a resource is contained in another resource, it SHALL NOT have a meta.versionId or a meta.lastUpdated
: contained.meta.versionId.empty() and contained.meta.lastUpdated.empty()
dom-5errorPatientIf a resource is contained in another resource, it SHALL NOT have a security label
: contained.meta.security.empty()
dom-6best practicePatientA resource should have narrative for robust management
: text.`div`.exists()
ele-1error**ALL** elementsAll FHIR elements must have a @value or children
: hasValue() or (children().count() > id.count())
ext-1error**ALL** extensionsMust have either extensions or value[x], not both
: extension.exists() != value.exists()
ips-pat-1errorPatient.namePatient.name.given, Patient.name.family or Patient.name.text SHALL be present
: family.exists() or given.exists() or text.exists()
pat-1errorPatient.contactSHALL at least contain a contact's details or a reference to an organization
: name.exists() or telecom.exists() or address.exists() or organization.exists()

 

Other representations of profile: CSV, Excel, Schematron