RareLink Implementation Guide
2.0.0 - 2.0.0

RareLink Implementation Guide - Local Development build (v2.0.0) built by the FHIR (HL7® FHIR® Standard) Build Tools. See the Directory of published versions

Resource Profile: RareLink IPS Patient

Official URL: https://rarelink.bih-charite.de/fhir/StructureDefinition/rarelink-ips-patient Version: 2.0.0
Draft as of 2025-12-15 Computable Name: RareLinkIPSPatient

A RareLink-specific profile for the IPS Patient resource.

Usages:

You can also check for usages in the FHIR IG Statistics

Formal Views of Profile Content

Description of Profiles, Differentials, Snapshots and how the different presentations work.

Terminology Bindings

Path Status Usage ValueSet Version Source
Patient.identifier.use Base required IdentifierUse 📍4.0.1 FHIR Std.
Patient.name.extension:dataAbsentReason.​value[x] Base required DataAbsentReason 📦4.0.1 FHIR Std.
Patient.name.use Base required NameUse 📍4.0.1 FHIR Std.
Patient.gender Base required AdministrativeGender 📍4.0.1 FHIR Std.
Patient.link.type Base required LinkType 📍4.0.1 FHIR Std.

Constraints

Id Grade Path(s) Description Expression
dom-2 error Patient If the resource is contained in another resource, it SHALL NOT contain nested Resources contained.contained.empty()
dom-3 error Patient If the resource is contained in another resource, it SHALL be referred to from elsewhere in the resource or SHALL refer to the containing resource contained.where((('#'+id in (%resource.descendants().reference | %resource.descendants().as(canonical) | %resource.descendants().as(uri) | %resource.descendants().as(url))) or descendants().where(reference = '#').exists() or descendants().where(as(canonical) = '#').exists() or descendants().where(as(canonical) = '#').exists()).not()).trace('unmatched', id).empty()
dom-4 error Patient If a resource is contained in another resource, it SHALL NOT have a meta.versionId or a meta.lastUpdated contained.meta.versionId.empty() and contained.meta.lastUpdated.empty()
dom-5 error Patient If a resource is contained in another resource, it SHALL NOT have a security label contained.meta.security.empty()
dom-6 best practice Patient A resource should have narrative for robust management text.`div`.exists()
ele-1 error **ALL** elements All FHIR elements must have a @value or children hasValue() or (children().count() > id.count())
ext-1 error **ALL** extensions Must have either extensions or value[x], not both extension.exists() != value.exists()
ips-pat-1 error Patient.name Patient.name.given, Patient.name.family or Patient.name.text SHALL be present family.exists() or given.exists() or text.exists()

This structure is derived from PatientUvIps

Terminology Bindings

Path Status Usage ValueSet Version Source
Patient.language Base preferred Common Languages 📦4.0.1 FHIR Std.
Patient.identifier.use Base required IdentifierUse 📍4.0.1 FHIR Std.
Patient.identifier.type Base extensible IdentifierType 📍4.0.1 FHIR Std.
Patient.name.extension:dataAbsentReason.​value[x] Base required DataAbsentReason 📦4.0.1 FHIR Std.
Patient.name.use Base required NameUse 📍4.0.1 FHIR Std.
Patient.gender Base required AdministrativeGender 📍4.0.1 FHIR Std.
Patient.maritalStatus Base extensible MaritalStatus 📦4.0.1 FHIR Std.
Patient.contact.relationship Base extensible Patient Contact Relationship 📦4.0.1 FHIR Std.
Patient.contact.gender Base required AdministrativeGender 📍4.0.1 FHIR Std.
Patient.communication.​language Base preferred Common Languages 📦4.0.1 FHIR Std.
Patient.link.type Base required LinkType 📍4.0.1 FHIR Std.

Constraints

Id Grade Path(s) Description Expression
dom-2 error Patient If the resource is contained in another resource, it SHALL NOT contain nested Resources contained.contained.empty()
dom-3 error Patient If the resource is contained in another resource, it SHALL be referred to from elsewhere in the resource or SHALL refer to the containing resource contained.where((('#'+id in (%resource.descendants().reference | %resource.descendants().as(canonical) | %resource.descendants().as(uri) | %resource.descendants().as(url))) or descendants().where(reference = '#').exists() or descendants().where(as(canonical) = '#').exists() or descendants().where(as(canonical) = '#').exists()).not()).trace('unmatched', id).empty()
dom-4 error Patient If a resource is contained in another resource, it SHALL NOT have a meta.versionId or a meta.lastUpdated contained.meta.versionId.empty() and contained.meta.lastUpdated.empty()
dom-5 error Patient If a resource is contained in another resource, it SHALL NOT have a security label contained.meta.security.empty()
dom-6 best practice Patient A resource should have narrative for robust management text.`div`.exists()
ele-1 error **ALL** elements All FHIR elements must have a @value or children hasValue() or (children().count() > id.count())
ext-1 error **ALL** extensions Must have either extensions or value[x], not both extension.exists() != value.exists()
ips-pat-1 error Patient.name Patient.name.given, Patient.name.family or Patient.name.text SHALL be present family.exists() or given.exists() or text.exists()
pat-1 error Patient.contact SHALL at least contain a contact's details or a reference to an organization name.exists() or telecom.exists() or address.exists() or organization.exists()

Key Elements View

Terminology Bindings

Path Status Usage ValueSet Version Source
Patient.identifier.use Base required IdentifierUse 📍4.0.1 FHIR Std.
Patient.name.extension:dataAbsentReason.​value[x] Base required DataAbsentReason 📦4.0.1 FHIR Std.
Patient.name.use Base required NameUse 📍4.0.1 FHIR Std.
Patient.gender Base required AdministrativeGender 📍4.0.1 FHIR Std.
Patient.link.type Base required LinkType 📍4.0.1 FHIR Std.

Constraints

Id Grade Path(s) Description Expression
dom-2 error Patient If the resource is contained in another resource, it SHALL NOT contain nested Resources contained.contained.empty()
dom-3 error Patient If the resource is contained in another resource, it SHALL be referred to from elsewhere in the resource or SHALL refer to the containing resource contained.where((('#'+id in (%resource.descendants().reference | %resource.descendants().as(canonical) | %resource.descendants().as(uri) | %resource.descendants().as(url))) or descendants().where(reference = '#').exists() or descendants().where(as(canonical) = '#').exists() or descendants().where(as(canonical) = '#').exists()).not()).trace('unmatched', id).empty()
dom-4 error Patient If a resource is contained in another resource, it SHALL NOT have a meta.versionId or a meta.lastUpdated contained.meta.versionId.empty() and contained.meta.lastUpdated.empty()
dom-5 error Patient If a resource is contained in another resource, it SHALL NOT have a security label contained.meta.security.empty()
dom-6 best practice Patient A resource should have narrative for robust management text.`div`.exists()
ele-1 error **ALL** elements All FHIR elements must have a @value or children hasValue() or (children().count() > id.count())
ext-1 error **ALL** extensions Must have either extensions or value[x], not both extension.exists() != value.exists()
ips-pat-1 error Patient.name Patient.name.given, Patient.name.family or Patient.name.text SHALL be present family.exists() or given.exists() or text.exists()

Differential View

This structure is derived from PatientUvIps

Snapshot View

Terminology Bindings

Path Status Usage ValueSet Version Source
Patient.language Base preferred Common Languages 📦4.0.1 FHIR Std.
Patient.identifier.use Base required IdentifierUse 📍4.0.1 FHIR Std.
Patient.identifier.type Base extensible IdentifierType 📍4.0.1 FHIR Std.
Patient.name.extension:dataAbsentReason.​value[x] Base required DataAbsentReason 📦4.0.1 FHIR Std.
Patient.name.use Base required NameUse 📍4.0.1 FHIR Std.
Patient.gender Base required AdministrativeGender 📍4.0.1 FHIR Std.
Patient.maritalStatus Base extensible MaritalStatus 📦4.0.1 FHIR Std.
Patient.contact.relationship Base extensible Patient Contact Relationship 📦4.0.1 FHIR Std.
Patient.contact.gender Base required AdministrativeGender 📍4.0.1 FHIR Std.
Patient.communication.​language Base preferred Common Languages 📦4.0.1 FHIR Std.
Patient.link.type Base required LinkType 📍4.0.1 FHIR Std.

Constraints

Id Grade Path(s) Description Expression
dom-2 error Patient If the resource is contained in another resource, it SHALL NOT contain nested Resources contained.contained.empty()
dom-3 error Patient If the resource is contained in another resource, it SHALL be referred to from elsewhere in the resource or SHALL refer to the containing resource contained.where((('#'+id in (%resource.descendants().reference | %resource.descendants().as(canonical) | %resource.descendants().as(uri) | %resource.descendants().as(url))) or descendants().where(reference = '#').exists() or descendants().where(as(canonical) = '#').exists() or descendants().where(as(canonical) = '#').exists()).not()).trace('unmatched', id).empty()
dom-4 error Patient If a resource is contained in another resource, it SHALL NOT have a meta.versionId or a meta.lastUpdated contained.meta.versionId.empty() and contained.meta.lastUpdated.empty()
dom-5 error Patient If a resource is contained in another resource, it SHALL NOT have a security label contained.meta.security.empty()
dom-6 best practice Patient A resource should have narrative for robust management text.`div`.exists()
ele-1 error **ALL** elements All FHIR elements must have a @value or children hasValue() or (children().count() > id.count())
ext-1 error **ALL** extensions Must have either extensions or value[x], not both extension.exists() != value.exists()
ips-pat-1 error Patient.name Patient.name.given, Patient.name.family or Patient.name.text SHALL be present family.exists() or given.exists() or text.exists()
pat-1 error Patient.contact SHALL at least contain a contact's details or a reference to an organization name.exists() or telecom.exists() or address.exists() or organization.exists()

 

Other representations of profile: CSV, Excel, Schematron