NAPKON GECCO+
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Resource Profile: EQ5D Questionnaire Response

Defining URL:https://www.napkon.de/fhir/StructureDefinition/geccoplus-eq5d-response
Version:1.0.0
Name:EQ5DResponse
Title:EQ5D Questionnaire Response
Status:Active as of 2021-11-25
Definition:

Response to the EQ-5D Questionnaire

Publisher:Charité - Universitätsmedizin Berlin
Source Resource:XML / JSON / Turtle

The official URL for this profile is:

https://www.napkon.de/fhir/StructureDefinition/geccoplus-eq5d-response

Guidance

This profile is used to instantiate answers to the EQ-5D Questionnaire.

The following response options are from the GECCOplus Code System:

Agility and mobility

Response Option Code
Ich habe keine Probleme herumzugehen. #11 "I have no problems in walking about."
Ich habe leichte Probleme herumzugehen. #12 "I have slight problems in walking about."
Ich habe mäßige Probleme herumzugehen. #13 "I have moderate problems in walking about."
Ich habe große Probleme herumzugehen. #14 "I have severe problems in walking about."
Ich bin nicht in der Lage herumzugehen. #15 "I am unable to walk about."
Ich bin nicht in der Lage herumzugehen. #16 "No information available."

Self-sufficiency

Response Option Code
Ich habe keine Probleme, mich selbst zu waschen oder anzuziehen. #21 "I have no problems washing or dressing myself."
Ich habe leichte Probleme, mich selbst zu waschen oder anzuziehen. #22 "I have slight problems washing or dressing myself."
Ich habe mäßige Probleme, mich selbst zu waschen oder anzuziehen. #23 "I have moderate problems washing or dressing myself."
Ich habe große Probleme, mich selbst zu waschen oder anzuziehen. #24 "I have severe problems washing or dressing myself."
Ich bin nicht in der Lage, mich selbst zu waschen oder anzuziehen. #25 "I am unable to wash or dress myself."
Keine Informationen verfügbar. #26 "No information available."

Daily activities

Response Option Code
Ich habe keine Probleme, meinen alltäglichen Tätigkeiten nachzugehen. #31 "I have no problems doing my usual activities."
Ich habe leichte Probleme, meinen alltäglichen Tätigkeiten nachzugehen. #32 "I have slight problems doing my usual activities."
Ich habe mäßige Probleme, meinen alltäglichen Tätigkeiten nachzugehen. #33 "I have moderate problems doing my usual activities."
Ich habe große Probleme, meinen alltäglichen Tätigkeiten nachzugehen. #34 "I have severe problems doing my usual activities."
Ich bin nicht in der Lage, meinen alltäglichen Tätigkeiten nachzugehen. #35 "I am unable to do my usual activities."
Keine Informationen verfügbar. #36 "No information available."

Pain and discomfort

Response Option Code
Ich habe keine Schmerzen oder Beschwerden. #41 "I have no pain or discomfort."
Ich habe leichte Schmerzen oder Beschwerden. #42 "I have slight pain or discomfort."
Ich habe mäßige Schmerzen oder Beschwerden. #43 "I have moderate pain or discomfort."
Ich habe starke Schmerzen oder Beschwerden. #44 "I have severe pain or discomfort."
Ich habe extreme Schmerzen oder Beschwerden. #45 "I have extreme pain or discomfort."
Keine Informationen verfügbar. #46 "No information available."

Anxiety and depression

Response Option Code
Ich bin nicht ängstlich oder deprimiert. #51 "I am not anxious or depressed."
Ich bin ein wenig ängstlich oder deprimiert. #52 "I am slightly anxious or depressed."
Ich bin mäßig ängstlich oder deprimiert. #53 "I am moderately anxious or depressed."
Ich bin sehr ängstlich oder deprimiert. #54 "I am severely anxious or depressed."
Ich bin extrem ängstlich oder deprimiert. #55 "I am extremely anxious or depressed."
Keine Informationen verfügbar. #56 "No information available."

This profile of a FHIR QuestionnaireResponse is derived from the QuestionnaireResponse FHIR resource.

Formal Views of Profile Content

Description of Profiles, Differentials, Snapshots and how the different presentations work.

NameFlagsCard.TypeDescription & Constraintsdoco
.. QuestionnaireResponse 0..*QuestionnaireResponseA structured set of questions and their answers
... id Σ0..1stringLogical id of this artifact
... meta Σ0..1MetaMetadata about the resource
... implicitRules ?!Σ0..1uriA set of rules under which this content was created
... text 0..1NarrativeText summary of the resource, for human interpretation
... contained 0..*ResourceContained, inline Resources
... extension 0..*ExtensionAdditional content defined by implementations
... modifierExtension ?!0..*ExtensionExtensions that cannot be ignored
... identifier Σ0..1IdentifierUnique id for this set of answers
... basedOn Σ0..*Reference(CarePlan | ServiceRequest)Request fulfilled by this QuestionnaireResponse
... partOf Σ0..*Reference(Observation | Procedure)Part of this action
... questionnaire Σ1..1canonical(Questionnaire)Form being answered
Required Pattern: https://www.napkon.de/fhir/eq5d-questionnaire
... status ?!Σ1..1codein-progress | completed | amended | entered-in-error | stopped
Binding: QuestionnaireResponseStatus (required): Lifecycle status of the questionnaire response.


Required Pattern: completed
... subject SΣ1..1Reference(Patient)A reference from one resource to another
... encounter Σ0..1Reference(Encounter)Encounter created as part of
... authored Σ0..1dateTimeDate the answers were gathered
... author Σ0..1Reference(Device | Practitioner | PractitionerRole | Patient | RelatedPerson | Organization)Person who received and recorded the answers
... source Σ0..1Reference(Patient | Practitioner | PractitionerRole | RelatedPerson)The person who answered the questions
... item I0..*BackboneElementGroups and questions
qrs-1: Nested item can't be beneath both item and answer
.... id 0..1stringUnique id for inter-element referencing
.... extension 0..*ExtensionAdditional content defined by implementations
.... modifierExtension ?!Σ0..*ExtensionExtensions that cannot be ignored even if unrecognized
.... linkId 1..1stringPointer to specific item from Questionnaire
.... definition 0..1uriElementDefinition - details for the item
.... text 0..1stringName for group or question text
.... answer 0..*BackboneElementThe response(s) to the question
..... id 0..1stringUnique id for inter-element referencing
..... extension 0..*ExtensionAdditional content defined by implementations
..... modifierExtension ?!Σ0..*ExtensionExtensions that cannot be ignored even if unrecognized
..... value[x] 0..1Single-valued answer to the question
Binding: QuestionnaireAnswerCodes (example): Code indicating the response provided for a question.

...... valueBooleanboolean
...... valueDecimaldecimal
...... valueIntegerinteger
...... valueDatedate
...... valueDateTimedateTime
...... valueTimetime
...... valueStringstring
...... valueUriuri
...... valueAttachmentAttachment
...... valueCodingCoding
...... valueQuantityQuantity
...... valueReferenceReference(Resource)
..... item 0..*See item (QuestionnaireResponse)Nested groups and questions
.... item 0..*See item (QuestionnaireResponse)Nested questionnaire response items

doco Documentation for this format
NameFlagsCard.TypeDescription & Constraintsdoco
.. QuestionnaireResponse 0..*QuestionnaireResponseA structured set of questions and their answers
... subject Σ1..1Reference(Patient)A reference from one resource to another

doco Documentation for this format

This structure is derived from QuestionnaireResponse

NameFlagsCard.TypeDescription & Constraintsdoco
.. QuestionnaireResponse 0..*QuestionnaireResponseA structured set of questions and their answers
... questionnaire 1..1canonical(Questionnaire)Form being answered
Required Pattern: https://www.napkon.de/fhir/eq5d-questionnaire
... status 1..1codein-progress | completed | amended | entered-in-error | stopped
Required Pattern: completed
... subject S1..1Reference(Patient)A reference from one resource to another

doco Documentation for this format

This structure is derived from QuestionnaireResponse

Summary

Mandatory: 2 elements
Must-Support: 1 element

Structures

This structure refers to these other structures:

 

Other representations of profile: CSV, Excel, Schematron

Terminology Bindings

PathConformanceValueSet / Code
QuestionnaireResponse.languagepreferredCommonLanguages
Max Binding: AllLanguages
QuestionnaireResponse.statusrequiredPattern: completed
QuestionnaireResponse.item.answer.value[x]exampleQuestionnaireAnswerCodes

Constraints

IdPathDetailsRequirements
qrs-1QuestionnaireResponse.itemNested item can't be beneath both item and answer
: (answer.exists() and item.exists()).not()